BEGIN:VCALENDAR VERSION:2.0 PRODID:-//wp-events-plugin.com//7.2.3.1//EN TZID:America/Phoenix X-WR-TIMEZONE:America/Phoenix BEGIN:VEVENT UID:1817@azbio.org DTSTART;TZID=America/Phoenix:20230929T090000 DTEND;TZID=America/Phoenix:20230929T120000 DTSTAMP:20230829T200544Z URL:https://www.azbio.org/events/voice-of-the-patient-2023 SUMMARY:Voice of the Patient - Virgina G. Piper Auditorium\, U of A BioMedi cal Campus - 29 Sep 23 09:00 DESCRIPTION:\n\n \;\nPatients are the reason we do what we do. \;\n Join the conversation on life science innovation from the patient perspect ive. \;\n\nDate: \; Friday\, September 29\, 2023\n\nTime: \;&n bsp\;9:00 AM – 12:00 PM\n\nLocation: \; Virginia G. Piper Auditorium \, University of Arizona College of Medicine – Phoenix\n\n \;600 E. Van Buren Street\, \;Phoenix\, AZ 85004\n\n\n\n \;\n\nRegistration is complementary but space is limited.\n\nAttendees are responsible for p arking fees.\n\n \;\nAgenda\n9:00 AM \;  \;Check-in\, Networki ng\, Refreshments\n\n10:00 AM Program Begins\n\n Welcome - Kevin Lohenry\ , PhD\, PA-C\, The University of Arizona\n Patient Spotlight - Leonard Ch ayrez and his partner\, Mark Garrity\n My Voice: Patients as Advocates - Clare Cory\, PhD\, George Galliher\, Mark Geiger\, and Alex Tessmer (Moder ator)\n Patient Spotlight - Mikaela Emery and Dr. Brad Pasternak\n From Patient to Physician - Nina Cherian\, Natalya Foreman\, Arianna Tuomey\, K elly Walter \, and Taylor Hoffman (Moderator)\n Special Guest: Representa tive Amish Shah\, MD\, Co-chair\, Arizona Legislative Bioscience &\; He althcare Caucus.\n\n12:00 PM \; Program concludes\nVoices\nLeonard Cha yrez and his partner\, Mark Garrity have been together for 21 years. Leona rd is an Arizona native and Mark is just 18 months shy of being one. Leona rd and Mark began noticing changes in Leonard's memory and other cognitive abilities about 7 years ago. It took several years for him to finally be diagnosed with Younger Onset Alzheimer's Disease\; at the age 54 years old . They have been deeply involved with advocating about this devasting dise ase. \;  \;It took three years to get an initial Mild Cognitive Im pairment diagnosis and another year for the Young Onset Alzheimer's diagno sis. They had to advocate to their local medical providers to get past ass umptions that the memory issues were due to stress. After finally being di agnosed\, Leonard wanted to jump in to learn about his disease and to help raise awareness and\, to remove the stigma of Alzheimer's. Mark has suppo rted Leonard for every step of their journey. \;Leonard's enthusiasm\, with Mark's determination to support their shared success and advocacy\, has proven to be helpful in giving both of them purpose and meaning in the ir lives. Key issues that they directly address are for earlier and easier detection and diagnosis\, increased medical provider awareness\, and trea tment therapies that are just now beginning to come to market. \;  \;\n\nNina Cherian is a first-year medical student at the University of Ar izona College of Medicine - Phoenix. She graduated from UCLA with a Bachel or of Science degree in neuroscience\, then spent four years conducting pa thology and clinical ophthalmology research before entering medical school . As a child\, Nina struggled with vision loss and was diagnosed with an u ncommon eye disorder called chronic intermediate uveitis. Her experience w ith chronic eye disease inspired her to pursue medicine and gave her preci ous insight into what comprises meaningful patient care. \;\n\n \; \n\nClare Cory\, Ph.D.\, is a two-time survivor of Inflammatory Breast Can cer. Following diagnoses in 2017 and 2021\, she has undergone extensive tr eatment and lives with bilateral lymphedema. Raised in a small town in Mon tana\, she has made Arizona home for more than three decades. A clinical p sychologist\, she has served as Associate Director of the Pascua Yaqui Tri be’s Centered Spirit Behavioral Health program for more than 26 years. S he shares about her cancer experiences in a blog\, momentsofclareity.com. She is passionate about advocacy\, cancer research\, family\, sunrises and sunsets.\n\n \;\n\nMikaela Emery was diagnosed with Crohn’s disease at the age of 5. She has never really known a life without this chronic i llness and has developed a sincere empathy and caring for others as a resu lt.  \;She has had a rough road in the last 7 years\, including flares \, osteoporosis\, hair-loss\, seizures\, multiple hospitalizations and med ication rejection. Mikaela has come through it all with a great sense of h umor and an outlook that amazes most. She has spread awareness through soc ial media and proudly shared her journey\, feeding tube and all.  \;Sh e is a member of a Junior IBD board that helps raise money for research an d supports newly diagnosed pediatric patients. Mikaela was recently an hon ored hero for the Crohn’s and Colitis Foundation Take Steps event. She i s a major advocate for Camp Oasis\, a summer camp for children with IBD. N ow\, at the age of 12\, Mikaela hopes to continue to raise awareness and f unds for Crohn’s disease research and support her fellow pediatric IBD w arriors.\n\nNatalya Foreman is a medical student at the University of Ariz ona College of Medicine - Phoenix. Her experiences advocating for her own complex health needs grew out of a medical mystery that filled the greater part of a decade. Just as she was gaining clarity and settling into a new diagnosis\, her world completely changed in one moment when she suffered a traumatic brain injury in March 2022\, months shy of starting medical sc hool. She openly shares her story to help advocate for other students with chronic illnesses and to ensure that future healthcare providers understa nd the \;patient perspective. \;Natalya is also working towards he r Master’s in Public Health through the University of Arizona Mel and En id Zuckerman College of Public Health. She holds a B.A. in Integrative Bio logy and French from the University of California - Berkeley. \;\n\nGe orge C. Galliher\, III  \;has been serving as a Peer Advocate since 19 98. Living with a major depressive disorder before then\; he managed to gr aduate college\, work as a Biomedical R&\;D Engineer and as a Scientist - Chemist. He started a business as a Process &\; Product Validation s pecialist. \;Major Depression alone brought all career efforts to a ha lt. Fortunately\, during a voluntary hospitalization\, a doctor specializi ng in "psycho neuro pharmacology" prescribed a "magic bullet".\n\n \;\ n\n\n\nMark Geiger is a lifelong hydrocephalus advocate. Mark was diagnose d with hydrocephalus as a child and has undergone multiple shunt surgeries over his lifetime. He has made raising awareness and funding for hydrocep halus his life’s work\, dedicating his time professionally as well as ru nning marathons recreationally to raise awareness and support for the caus e. \; In 2023\, Mark joined the team at Anuncia Medical as VP of Sales and Marketing where new innovative devices to help people living with hyd rocephalus are designed\, developed. and delivered. \;\n\n \;\n\n\ n\nTaylor Hoffman \; is medical student at the University of Arizona C ollege of Medicine – Phoenix. As a lifelong patient managing multiple au toimmune diseases\, including Type 1 Diabetes\, Taylor has used her experi ences to influence policy\, pass legislation\, and teach advocacy insights . \; \;She was recently awarded the Primary Care Physician Scholar ship for her focus on the voice of the patient in chronic disease manageme nt. \;Taylor has a Master’s of Medical Studies from the UACOM-P and graduated Summa Cum Laude from Arizona State University with a B.S. in Neu robiology\, Physiology\, and Behavior.\n\n \;\n\nJoan Koerber-Walker\, is a wife\, mother\, grandmother\, and \; patient advocate. \; Sh e also serves as president and CEO of AZBio and as chairman of the board o f the Opportunity Through Entrepreneurship Foundation. \; These two or ganizations have come together to create AZAdvances. \; Its mission is to support the creation and of Arizona-based health innovations. The team is  \;working to create a sustainable solution to address the need fo r early-stage life science funding for researchers and companies in Arizon a and developing the programs they need to succeed. \; The goal is to help develop and deliver the treatments and cures that patients are waitin g for. \;\n\n \;\nKevin Lohenry\, PhD\, PA-C serves as Interim Dea n\, College of Health Sciences\; Assistant Vice President\, Interprofessio nal Education\; Clinical Professor\, Department of Medicine at the Univers ity of Arizona. He joined the University of Arizona Health Sciences in 202 2 after serving as the associate dean for graduate student affairs at the University of Southern California Keck School of Medicine.\n \;\n\n&nb sp\;\n\n \;\n\nDr. Brad Pasternak is a Clinical Professor of Child Hea lth at The University of Arizona. \; He is currently the medical direc tor of the pediatric inflammatory bowel program (IBD)\, as well as the fec al microbiota transplant program at Phoenix Children's Hospital. He serves on the National Scientific Advisory committee of the Crohn’s and Coliti s Foundation\, the Pediatric IBD Committee of NASPGHAN\, is co-chair of th e Data Operations Committee of Improve Care Now (a large international col laborative of pediatric IBD programs) and has established an advocacy comm ittee through that organization. \; He has been involved in creating c linical guidelines and is currently involved in numerous clinical trials a s primary investigator\, multicenter studies evaluating epidemiology and p ractice patterns\, \; as well as translational research regarding the microbiome in pediatric IBD. \; His greatest appreciation\, next to hi s own family\, is watching his young patients improve\, thrive and become successful. \;\n\n \;\n\n\n\nAmish Shah\, MD\, MPH is a member of the Arizona House of Representatives\, representing the people of \; C entral Phoenix and South Scottsdale since 2019. Dr. Shah is co-chair of th e Arizona Legislative Bioscience &\; Healthcare Caucus\, and a member&n bsp\; of the House Health &\; Human Services Committee and the House&nb sp\; Appropriations Committee. Dr. Shah is a practicing physician who has been saving lives in the emergency department \; for 20 years. He is c urrently board certified in Emergency Medicine and Sports Medicine and pra ctices throughout Arizona\, treating adults and children.\n\n \;\n\n\n \nAlex Tessmer had just gotten married in 1997 when he started having diff iculty hearing. After his wife persistently pleaded with him to get a hear ing test\, Alex finally visited an otologist in 1999. Sure enough\, the ot ologist diagnosed him with significant hearing loss in the high frequency range. The cause of the hearing loss was most likely due to listening to l oud music at a younger age. Even though hearing aid technology has come a long way\, Alex still has difficulty hearing individuals in a noisy enviro nments or if someone is trying to whisper to him. COVID-19 proved especial ly difficult communicating with people wearing masks since he was unable t o read lips. Alex currently works at BD as an Associate Director of Ideati on and enjoys adventures with his beautiful wife\, Susan\, and 4 kids.\n\n Arianna Tuomey is a medical student at the University of Arizona College o f Medicine – Phoenix. She received her Master of Science in Cellular and Molecular Medicine from the University of Arizona College of Medicine – Tucson. In her second undergraduate year at the University of California – San Diego\, she was diagnosed with Type 1 Diabetes at the age of 18. S ubsequently\, she was drawn to the field of diabetes\, volunteered with th e non-profit AYUDA (American Youth Understanding Diabetes Abroad) for 2 ye ars\, and joined as AYUDA’s Director of Operations in 2017. In this role \, she has helped support youth living with Type 1 Diabetes in the United States and the Dominican Republic\, maintaining AYUDA's mission to empower youth to be agents of change and help diabetes communities around the wor ld.\n\nKelly Walter is a medical student at the University of Arizona Coll ege of Medicine - Phoenix. She was born and raised in the northwest suburb s of Chicago\, and moved to Boston to attend Northeastern University. In 2 020\, during her sophomore year of college\, she was diagnosed with ulcera tive colitis. After a year of learning how to live with a chronic illness\ , she began working in the hospital taking care of other chronically ill p atients. In this role\, she was able to better understand the patient expe rience apart from her own and some of the challenges that exist in accessi ng healthcare.\n \;\nThank You to Our Sponsors!\n \;  \;\n\n\n  \;\nPhotographic and Video Notice:\nBy registering for or entering an event or program hosted by the Arizona Bioindustry Association\, Inc. (AZ Bio)\, you are entering an area where photography\, audio and video record ing may occur. Your entry and presence on the event premises constitutes y our consent to be photographed\, filmed\, and/or otherwise recorded and to the release\, publication\, exhibition\, or reproduction of any and all r ecorded media of your appearance\, voice\, and name for any purpose whatso ever in perpetuity in connection with AZBio\, its sponsors\, and its initi atives\, including\, by way of example only\, use on websites\, in social media\, news and advertising. By entering the event premises\, you waive a nd release any claims you may have related to the use of recorded media of you at the event\, including\, without limitation\, any right to inspect or approve the photo\, video or audio recording of you\, any claims for in vasion of privacy\, violation of the right of publicity\, defamation\, and copyright infringement or for any fees for use of such record media.\n\nY ou understand that all photography\, filming and/or recording will be done in reliance on this consent. If you do not agree to the foregoing\, pleas e do not enter the event premises. LOCATION:Virgina G. Piper Auditorium\, U of A BioMedical Campus\, 600 E. Va n Buren\, Phoenix\, AZ\, United States GEO:33.4516;-112.081 X-APPLE-STRUCTURED-LOCATION;VALUE=URI;X-ADDRESS=600 E. Van Buren\, Phoenix\ , AZ\, United States;X-APPLE-RADIUS=100;X-TITLE=Virgina G. Piper Auditoriu m\, U of A BioMedical Campus:geo:33.4516,-112.081 END:VEVENT BEGIN:VTIMEZONE TZID:America/Phoenix X-LIC-LOCATION:America/Phoenix BEGIN:STANDARD DTSTART:20220929T090000 TZOFFSETFROM:-0700 TZOFFSETTO:-0700 TZNAME:MST END:STANDARD END:VTIMEZONE END:VCALENDAR