BEGIN:VCALENDAR VERSION:2.0 PRODID:-//wp-events-plugin.com//7.2.3.1//EN TZID:America/Phoenix X-WR-TIMEZONE:America/Phoenix BEGIN:VEVENT UID:1611@azbio.org DTSTART;TZID=America/Phoenix:20211008T100000 DTEND;TZID=America/Phoenix:20211008T110000 DTSTAMP:20210930T195626Z URL:https://www.azbio.org/events/voice-of-the-patient SUMMARY:Voice of The Patient - - 8 Oct 21 10:00 DESCRIPTION:\nPatients are the reason we do what we do. \;\nJoin us for a conversation on life science innovation from the patient perspective.&n bsp\; \;\nTo protect the heath of both our patient presenters and gues ts\, this event will be presented via Zoom. \; Instructions on how to access the event will be provided to registered attendees. \;\n\nFrida y\, October 8\, 2021\n\n10 AM - \; 11 AM\n\nDelivered via Zoom\nREGIST ER\nThere is no cost for Attendee Registration. For more information on su pporting partner opportunities\, please see below.\nAgenda \;\nProduce d in partnership with Arizona’s patient advocacy community\, Voice of th e Patient will bring together people who are living with acute and chronic health challenges to share their life experiences with life science and h ealthcare leaders. \; All speakers at Voice of the Patient will be pat ients \; and patient advocates as they share their experiences and wha t they need from us in the future.\n\n\n\n\n10:00 AM \; Program Begins *\n\n11:00 \; AM \; Program Concludes\n\nDiscussion Moderator:&nb sp\;Renae Moomjian\, Acacia Consultants\n\nPatient Testimony and Panel:\n\ n Greg Garcia \;went up a mountain planning to ski down with this fam ily. That is not exactly how it worked out. Hear about Greg's experience w ith \;Myocarditis \;and his journey back to health.\n Rachael Cas tillo is living with Nephrotic Syndrome\, which  \;is a disease that e ffects the kidneys. Unfortunately I was misdiagnosed with lupus so did not receive proper treatment for my condition for 15 years. Advanced stages o f Nephrotic Syndrome\, which is what I have\, resulted in a kidney transpl ant in 2018.\n Michelle Lott lives with two chronic diseases.  \;Cerv ical dystonia\, which is a rare neurological disorder\, and hypermobility which is common however frequently mis-diagnosed. \; These two conditi ons exacerbate each other. \; \;\n Matthew Nelson\, first and for emost\, is a father to two wonderful daughters and a husband to a fantasti cally talented wife. Throughout his career\, Matt has held roles in the su pport of science\, mostly in the neuroscience field and as luck would have it\, has worked at Barrow Neurological Institute as a research operation manager for last 11 years. In February of 2016\, Matt came home with facia l numbness and didn’t think much of it. After a visit to urgent care\, t he ER a neurologist and finally an MRI\, he was diagnosed with relapse rem itting MS. He has been on disease modifying therapy ever since. This thera py is designed to inhibit my immune cells that are thought to target the n euronal myelin\, from leaving the lymphatic system.\n Julie Hoffman is he r daughter's #1 fan and an active patient advocate helping to navigate the challenging journey of living with autoimmune diseases.\n Pat Elliott is a two time cancer survivor\, at age 35 she was treated via traditional tr eatment for breast cancer at a time when it wasn’t discussed in public a nd there was little patient support. In 2009 she was diagnosed with a rare cancer\, Chronic Myeloid Leukemia\, which used to be a death sentence for most patients. She was treated with an oral targeted therapy which was th e fastest drug ever approved by the FDA and is considered by many as the c losest thing we have to a cure for cancer.Today\, thanks to technology\, P at has a global support network that includes patients and physicians arou nd the world and can immediately access clinical research to stay on top o f her condition. \;\n In 1991\, Lee Stein was diagnosed with a Brain Aneurysm which bled. \; It was inoperable as it was diagnosed to have clotted between the MRI and the angiogram. The radiology was deemed so unu sual that his case was published in The Journal of Surgical Radiolgy in 19 97. \; The authors were the chief of Radiology and the Chief of Neurol ogy and the selected neuro surgeon. \; But\, did they get it right?&nb sp\; Lee founded a medical device company that uses AI to diagnose postura l abnormalities. He lives in San Diego\, serves on many boards and is the former attorney for Richard Branson. His website is www. Stein.to\n\n  \;\n\nNote: \; The Zoom platform will remain open following the progra m as needed to address Audience \; Questions submitted in the chat dur ing the program.\n\n*Live Stream \; via Zoom \;\n\n \;\n\n\nTh ank you to our supporting partner organizations\n \; \n\nPlease contac t AZBio For more information on sponsor benefits. END:VEVENT BEGIN:VTIMEZONE TZID:America/Phoenix X-LIC-LOCATION:America/Phoenix BEGIN:STANDARD DTSTART:20201008T100000 TZOFFSETFROM:-0700 TZOFFSETTO:-0700 TZNAME:MST END:STANDARD END:VTIMEZONE END:VCALENDAR