Date/Time
Date(s) - 16 Mar 2026
9:30 AM - 3:30 PM
Location
Arizona Capitol
AZBio, the Skeletal Conditions Advocacy Coalition, and the Little Legs Big Heart Foundation invite you to join a day of advocacy and action on behalf of all Arizonans impacted by rare skeletal conditions.
Join us at the Arizona State Capitol to meet your state legislators, share your patient story, and help advance key policy priorities. We’ll highlight the critical need for early diagnosis and intervention, dignity in care, and support through multiple life stages.
Rare skeletal conditions have been left out of the rare disease narrative in recent years.
The status quo to “wait and see” what happens should not be the norm for the children born each year with rare skeletal conditions.
We hope to see you there!
Date: Monday, March 16, 2026
Time: 9:30 am – 3:30 pm
Location:
Old Senate Chamber
Arizona Capitol Museum
1700 W Washington St. Phoenix. AZ. 85007
Light Refreshments and Lunch will be provided
REGISTER
Attendees are asked to provide a home address so we can let your legislators know you are coming!
Special Guest Speakers:
Voice of the Patient: Kristen DeAndrade, Founder and President, The Little Legs Big Heart Foundation,
A 501(c)(3) organization, The Little Legs Big Heart Foundation is dedicated to empower and support individuals living with skeletal dysplasia and their families.
Building Relationships: Joan Koerber-Walker, President & CEO, Arizona Bioindustry Association (AZBio).
Health Innovation: Michael Ash, Senior Vice President, Skeletal Conditions, BioMarin
Thank you to our lunch sponsor:
