“The immediate response was very exciting, 15,000 people searching for study opportunities in the first month it was launched,” said Jessica Langbaum, PhD, Principal Scientist, Banner Alzheimer’s Institute and Associate Director, Alzheimer’s Prevention Initiative.
APR Studies: Something for Everyone
Using a clickable map of the United States on the Study Opportunities page, people learn about Alzheimer’s prevention research studies in their respective states, request information and possibly get involved in the studies.
“For 2015, we’re focused on growing our study portfolio to include more opportunities for Alzheimer’s Prevention Registry members,” said Nellie High, MEd, Research Project Coordinator, Alzheimer’s Prevention Initiative and Banner Alzheimer’s Institute. “We know this will be a win-win for the researchers and Alzheimer’s Prevention Registry members.”
Alzheimer’s Prevention Registry featured a variety of studies in 2014, including:
• Brain Health Registry – A registry dedicated to speeding up cures for Alzheimer’s, Parkinson’s, depression, PTSD, and other brain disorders.
• MindCrowd – A first-of-its-kind web-based memory study.
• TOMMORROW Study – A research study seeking to learn more about the earliest stages of Alzheimer’s disease.
APR Members: Armed with Information
In 2014, the Alzheimer’s Prevention Registry team also focused on providing members information they can use in their daily lives. The recently launched e-newsletter, Caregiver Bulletin, for example, provides Alzheimer’s caregivers helpful resources, tips and tools.
“We’re impressed by the engagement level of our members,” said Dr. Langbaum. “We’ve asked them to tell us what kind of information is most important to them and how they want us to communicate with them. Their input has been tremendous.”
In 2015, the Alzheimer’s Prevention Registry team will continue to engage its more than 45,000 members and reach out to involve more people in the Registry.
“We want to celebrate all our members have done for the Registry,” Dr. Langbaum said. “All of our successes are due to our members and we thank them for their support.”
by Alzheimer’s Prevention Bulletin on December 19, 2014